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Books on Elder Care, Home Health Care, Aging Issues & Hospice

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Books, Articles, Magazines & Other Recommended Reading

Elder Care Books Section: Caring for Aging Parents

I have recommended this book many times to people who have the heart-breaking task of caring for a family member with Alzheimer Disease or some other form of dementia. This book is the most practical and compassionate guide yet, and is now updated with some recent research (new research is appearing almost every 6 months!) The most important gift of this book will be an understanding of the most frustrating and exhausting aspects of such caregiving, and the very useful solutions the author offers that actually are effective.

_ Dr. Tedde Rinker, Anti-Aging Medical Specialist, Redwood City, CA
How to Care for Aging Parents
by Virginia Morris, Robert M. Butler

Virginia Morris is an award-winning author and journalist, and a nationally recognized authority on eldercare. Her previous book is Talking About Death, published in paperback by Algonquin.Expanded to be over 650 pages this book covers all the emotional, legal, financial, medical, and logistical issues in caring for the elderly.

How to Care For Aging Parents is the essential reference book for anyone who is or will be caring for the elderly. It is clearly written, carefully researched and thoroughly indexed to provide quick access to all questions. As a psychotherapist I keep this book close at hand to help unsnarl any issues with or about the aging population.

_ Susan S. Griffin

As families age, more and more adult children will be caring for older parents. Often, caregiving responsibilities begin as a result of a sudden illness, hospitalization, or other crisis. Faced with a multitude of caregiving obligations, families seek information to help them make essential decisions about their relative's future. To guide families through the care-planning process, Loverde, an elder care consultant, has compiled a workbook covering such issues as finances, legal concerns, insurance, housing, medical care, and death and dying.

This carefully designed guide also presents material in an unusually accessible way, with dozens of checklists, step-by-step mini-planning guides, lists of low-cost/free resources, website index, questions to ask with places to write down answers, spaces to record elder's vital medial, financial, and personal information, and more.

_ The Library Journal

This is a beautifully written, invaluable, practical guide for families facing serious illness or disability. This unique and truly masterful book combines the wisdom of Dr. Jacobs's extensive professional expertise with his moving personal story of parental illness and loss.

Following one family's journey with illness, the book addresses all the tough issues while providing a powerful model for resilience and the personal rewards that can come with caregiving. This superb book is a 'must' for family caregivers and healthcare professionals. I will strongly recommend it to my patients and their families.

_ John S. Rolland, MD, Department of Psychiatry, University of Chicago and Co-Director of the Chicago Center for Family Health
Elder Care Made Easier
by Marion Somers, PhD

If you are caring for an aging parent, spouse, or other loved one, you are not alone. Statistics show that nearly 25 percent of all households in the United States are providing care for an elderly person. Although you may be willing to help, you may find the task comes with unexpected challenges. Matters you never thought about are now your responsibility„healthcare, housing, financial and legal matters, as well as day-to-day issues involving nutrition, medications, and personal safety. You may find yourself worried, overworked, and exhausted.

Over the past thirty years, Dr. Marion Somers, a leading geriatric specialist, has helped thousands of individuals and their families with these matters. Now, in Elder Care Made Easier, she draws from those decades of experience to offer practical steps to help you navigate your caregiver's journey.

The Eldercare Handbook combines a daughter's compassion with the expertise of a trusted professional, thanks to Stella Henry's unique experiences as both a daughter who cared for her father at home and her mother in long-term care, and a 36-year veteran administrator who has counseled thousands of families on care giving. In this accessible book, she helps readers navigate the daunting logistics and powerful emotions of making care decisions for a loved one. She tackles all the tough issues, from spotting the warning signs of dementia to redefining sibling roles; from the all-important walk-through at the assisted living facility or nursing home to making the move; from when and how to visit to coping with demands of "Take me home!" She also demystifies the medical/legal/insurance maze.

This comprehensive guide covers a variety of caregiving situations, including locating services, managing medications, understanding benefits, choosing a nursing home, coping with memory loss, and hiring and handling in-home help. But social worker Beerman and Rappaport-Musson, a certified senior adviser, address important topics not often covered elsewhere when making the decision to become a caregiver (or deciding not to); helping a parent who refuses help; recognizing signs of elder abuse, neglect, and exploitation; and recognizing drug or alcohol abuse.

Writing primarily for women, who shoulder most caregiving responsibilities, the authors offer much supportive advice as well as anecdotes from other caregivers showing how to counteract the physical and emotional toll that caregiving responsibilities can exact.

_ Karen McNally Bensing, Benjamin Rose Library, Cleveland, Ohio

One in four families in the U.S. is caring for parents or other senior relatives-and 72% of the primary caregivers in these families are women. This book is written for those 16 million women who are part of the "sandwich generation"-caught between the needs of their elderly relatives and their young families.

The author, an aging expert who frequently appears on the Today Show, covers a lot of ground, directing this sourcebook at "caregivers at both ends of the spectrum," so whether readers are occasionally helping their parents balance their checkbook or are regularly bathing, feeding and dressing elderly family members, they'll find valuable advice in this volume.

Abramson excels when she addresses the guilt, frustration, anger, fatigue and burnout that befall many women when they're caught between caring for parents, children, maintaining a home and pursuing a career

This is a guide to taking care of difficult parents, parents who were themselves not very good at parenting. Taking Care of Parents Who Didn't Take Care of You offers readers compassionate and practical guidance to facing the psychological and emotional issues that arise when caring for aging parents, suggesting ways to navigate the minefields of aging parents and family dysfunctions and shows how to create new, emotionally healthy roles among the old family scripts. The result is a powerful and timely book that moves readers beyond anger, regret and grief in order to build healthy new family dynamics based on decency and mercy.

A guide that takes the fear out of home care and brings confidence and peace of mind to caregivers. The Comfort of Home starts with the basics and contains all the information caregivers need to do the job at their fingertips, both now and as new healthcare needs arise. The guide helps -make the home safe and comfortable, -handle everyday activities like toileting, bathing, and wheelchair transfers, -avoid infections and illnesses, -deal with Alzheimer's care, -communicate with healthcare professionals, -understand end-of-life health care documents and -avoid caregiver burnout.

This book empowers people without any healthcare education or experience to understand the mechanics of taking care of another person - no matter where they live. Both personally and professionally I would recommend this book to any person with a loved one who needs care.

_Anna Walters, Director, The Waud Patient and Family Resource Center, Rush Presbyterian St. Lukes Medical Center, Chicago, Illinois
"...the bible for the vast majority of loving, but untrained and unskilled family members providing care for their loved ones."
_The Honorable Mark O. Hatfield, U.S. Senator, Oregon
American Medical Association Guide to Home Caregiving
by American Medical Association (AMA)

At some time, most families will need to provide home care for an aging family member who is ill or disabled. While home caregiving provides many benefits, it takes careful planning, support, and patience. This guide offers manageable alternatives to residential treatment.

The American Medical Association Guide to Home Caregiving provides the information you need to take the best possible care of an elderly, ill, or disabled person in a home setting. Written by experts from the American Medical Association, the book explains all the essentials with advice that touches both the physical and the emotional aspects of caregiving.

This book clearly defines your vital role in developing your loved one's care plan. It teaches you to deal successfully with managed care organizations, home health services, and especially your loved one; and arms you with the knowledge and skills you need for deciding if your loved one's care is appropriate, if your doctor is the right one, if something more is needed. From wills and powers-of-attorney, to practical tips for dealing with disabilities, to long term care options, to battling stress and depression -- much "shared wisdom" in this book from Gary E. Barg, founder, publisher, and editor-in-chief of Today's Caregiver Magazine and Today's Caregiver Online and a recognized expert in the field of family caregiving

Caregiving usually doesn't happen gradually. Families are often thrust into the situation because of a crisis, without any experience on how to manage the overwhelming stress, responsibilities, legalities, and medical aspects. Gary Barg has done an excellent job sorting it all out with The Fearless Caregiver, guiding the reader through the maze. Very easy to read, motivating, empowering, and highly recommended!

_ Jacqueline Marcell, Author of Elder Rage

Many Americans are now living longer...A Guide to Elder Planning will help older Americans to live a better life! From asset protection strategies to avoiding costly scams, this guide is an indispensable blueprint for both senior citizens, and, as importantly, their children, many of whom will act as caregivers during their parents' later years.

Elder law specialist Steve Weisman shows you easy, practical strategies for protecting your assets...coping with Medicare, Medicaid, and Social Security...choosing where and how to live...getting the help you need...cutting your taxes...and much more...all in one easy-to-use book.

"This is an entertaining, authoritative, clear, and compelling look at a very broad topic. I highly recommend it to anyone seeking guidance with planning for later life."

_ Dr. Lois A. Vitt, Editor-in-Chief, Encyclopedia of Retirement and Finance, and Director of the Institute for Socio-Financial Studies

This book is intended to be a practical guide to estate planning, including how to manage the estate of a widowed parent, what to do when my spouse dies, and a user friendly guide to organizing your life affairs. Linda M. Sekely, Esq. is an experienced estate attorney who practices in her native Pennsylvania. She is a national speaker and frequent guest lecturer for financial companies, regional conferences and professional associations and is a published author of numerous articles on estate law. Her advice column "Your Estate of Mind" appears regularly in regional professional newsletters. Linda hosts her own live weekly radio talk show, "Your Financial Connection", where she advises listeners on matters of tax and estate planning.

_ Barbara Kolonay, RN, BSN, MHRM, CCM
Options For Elder Care

A River Called Forever is a true and inspirational story about aging, life, love, and death. It chronicles the journey that begins when a twenty-nine year old baby boomer is thrust into the role of parental caregiver and ends twenty-two years later with the death of both parents.

Along the way there are lighthearted explorations into the reasons God gives us families, parents as hooligans, and the patience to survive them, all set against the backdrop of growing up in the 1950-60's. The work also reveals the increasing challenge of our society as forty-five million Americans face the reality of caring for those who once cared for them.

The story pivots around a mother's deathbed and the resurrection of life's memories in the final hours. It offers an in-depth glimpse into a profound encounter that altered one family's perception forever.

A River Called Forever exists as a testament to hope-eternal for all those who will take on the responsibility of caring for others.

_ Editorial Review
A River Calleed Forever

Eldercare Resources & Books   Back to Quick Index of Eldercare Resources & Books

Elder Care Books Section: Hospice and Hospice Care, Death and Dying

The Hospice Handbook: A Complete Guide
by Larry Beresford, Elisabeth Kubler-Ross

Beresford, the well-known health policy writer, provides a complete account of the hospice movement, but this book is more than an intellectual discussion of a health-care policy; it also addresses practical questions. Beresford devotes the first two chapters to an explanation of hospice care and how to know when it is needed. In subsequent chapters he describes a typical hospice team (social worker, nurse, personal care aide and chaplain) and enumerates additional services, such as in-patient care.

He also explains the differences between community- and home health agency-based hospice programs and those that are based in hospitals or nursing homes. He also tackles insurance coverage, and his rundown of Medicare's hospice benefits is clear and concise (unlike most insurance forms). Finally, he reminds us that death, though inevitable, is rarely easy. His guide may make some of the tough decisions about choosing a hospice a little bit simpler.

On Death and Dying
by Elisabeth Kubler-Ross

One of the most important psychological studies of the late twentieth century, On Death and Dying grew out of Dr. Elisabeth Kubler-Ross's famous interdisciplinary seminar on death, life, and transition. In this remarkable book, Dr. Kubler-Ross first explored the now-famous five stages of death: denial and isolation, anger, bargaining, depression, and acceptance. Through sample interviews and conversations, she gives the reader a better understanding of how imminent death affects the patient, the professionals who serve that patient, and the patient's family, bringing hope to all who are involved.

I have used the advice and insight given by this book in my own ministry, and heartily recommend it to everyone, regardless of medical or ministerial intent, for it can give guidance on how to deal with the deaths of friends or family members and, ultimately, our own death. Death will never be a happy subject, but it needn't be a dark mystery devoid of meaning and guidance.

_ Fr Kurt Messick, Chaplain, Bell Trace Senior Living Community, Bloomington, Indiana

Any one who has a loved one with a terminal illness needs this book. It begins with how to deal with the diagnosis, the importance of hope and very helpful tips on getting the help you need from the medical system. It has two great chapters on dealing with pain and preventing unnecessary suffering. What I loved the most is it gives you the information that the doctors and nurses don't always have time to explain.

It also tenderly describes what to expect at the end. It helps you feel like you can have some control in a situation that makes you feel you have lost all control. I now know why Mother Teresa, Marianne Williamson and Elisabeth Kubler-Ross and my friends felt this book was important. I highly recommend it. Don't miss the comfort it will bring you and your loved ones.

Additional resources and excerpts are available on author David Kessler's Website: Questions & Answers on Death & Dying.

On Life After Death
by Elisabeth Kubler-Ross

Dr. Elisabeth Kubler-Ross is the author of On Death and Dying, where she addresses the process of death and bereavement, offering coping skills for the parent, family member or child who have lost a loved one. In On Life After Death, she discusses her twenty-five year research with the dying, illustrating what actually occurs to the person at the moment of death, taken from thousands of interviews with those that have had a near death experience, (NDE) concluding that this experience is virtually the same for everyone.

Dr. Kubler-Ross is recognized as the world's foremost expert on the subject of death, the process of dying and the afterlife. These four astounding essays are written clearly and persuasively based on years of research on literarily thousands of patients. This is an important book. Dr. Kubler-Ross has conveyed a strong message of hope for all of us, concluding that the basic purpose of our lives is to learn, and most importantly, to love.

_ C. Middleton, Australia

With more than 1,000,000 copies in print, Final Gifts has become a classic. In this moving and compassionate book, hospice nurses Maggie Callanan and Patricia Kelley share their intimate experiences with patients at the end of life, drawn from more than twenty years experience tending the terminally ill. Through their stories we come to appreciate the near-miraculous ways in which the dying communicate their needs, reveal their feelings, and even choreograph their own final moments; we also discover the gifts — of wisdom, faith, and love — that the dying leave for the living to share.

Callanan and Kelley describe a phenomenon they term "Nearing Death Awareness". When I first heard volunteers, nurses and others who work in hospice tell stories of people who have similar Nearing Death Experiences (not to be confused with "Near Death Experiences"), I was dubious. However, in my readings and hospice volunteer work, I find that these stories are universal, timeless and not as new age-y as I'd thought. We've been ignoring these wonderfully soothing stories of how people die, because for years we've moved birthing and dying out of the family and into hospitals. We are beginning to move them back.

If you've lost a loved one, are dealing with someone who is dying (yourself or someone else), if you avoid visiting friends who are dying or if you're struggling with your own awareness that someday you will die, please read this book. It will put your mind at ease.

_ Dale A. Blanchard, Ohio

When home and hospice care providers carry Mosby's Home Care & Hospice Drug Handbook, they have the most current drug information at their side. It includes introductory chapters on Medicare, home infusion therapy, and special patient populations; detailed coverage of drugs commonly used in home and hospice care organized by disorder or condition; and a four-color drug identification atlas.

It's the only handbook that focuses on the drug information that home care and hospice providers need when caring for their unique, growing patient population. Patient education is listed in every section.

The Final Act of Living
by Barbara Karnes

The author of the best-selling hospice book, Gone From My Sight: The Dying Experience, My Friend, I Care and A Time to Live, shares her insights and perceptions from years of working with people during the final act of living. Now her lectures and ideas have been put on paper. This book is written in a simple, direct yet gentle style as it explores the signs of approaching death from disease, the normal grieving process, living wills, durable power of attorney and other end of life issues.

The Final Act of Living will appeal to anyone who is searching for information regarding the dying experience. The book is being used as a resource on end-of-life issues; a volunteer hospice training handbook; a reference book for anyone working with end-of-life issues including family caregivers, lay ministers, social workers, counselors, nurses and chaplains; and a text book in various college and university classes.

The Hospice Choice: In Pursuit of a Peaceful Death
by John J. Mahoney, Galen W. Miller, Marcia Lattanzi-Licht

Hospice is the primary system to provide care for the terminally ill and their families. Warm, compassionate, and absolutely practical, this definitive resource from the National Hospice Organization will answer all your questions about hospice care and will show you how to make this comprehensive and flexible system work for you and your family. The Hospice Choice illustrates the gamut of situations dying people and their families may face and suggests ways to manage them. Throughout is information on the broad range of services hospice can provide.

This is the book that explains the ways in which all of us can benefit from the philosophies, the methods, and ultimately from the nurturing love that is the hospice's sustaining foundation.

_ Shwerwin B. Nuland, Author of How We Die
Dying Well
by Ira Byock, MD

This book is one of those rare works that combines passionate engagement with a universal issue, artful storytelling, and clinical expertise. The author, president-elect of the American Academy of Hospice and Palliative Care, argues that dying is not simply a holding pattern between life and death. It is a vital developmental time that holds infinite possibilities for deepening, learning to love, serving one another both as caregiver and receiver of care, and simply learning to "be" after what often has been a lifetime of mechanistic "doing."

Such possibility is created when simple principles of Hospice are honored. Such care, the author convinces us, is a privilege, a holy time in which human beings gather together in the face of Mystery in all of its agony and joy and wonder and transcendent meaning. We can only create human community, the author suggests, when we are willing to simultaneously look death in the face and to remain open to the gift of healing. I closed the book more alive, more thankful, less fearful, and more curious about the prospect of the adventures ahead.

_ Daphne Stevens, PhD, Psychotherapist and Personal Growth Coach, Macon, Georgia

This true story about the love between a spiritual mentor and his pupil has soared to the bestseller list for many reasons. For starters: it reminds us of the affection and gratitude that many of us still feel for the significant mentors of our past. It also plays out a fantasy many of us have entertained: what would it be like to look those people up again, tell them how much they meant to us, maybe even resume the mentorship?

Plus, we meet Morrie Schwartz — a one of a kind professor, whom the author describes as looking like a cross between a biblical prophet and Christmas elf. And finally we are privy to intimate moments of Morrie's final days as he lies dying from Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), a terminal illness. Even on his deathbed, this twinkling-eyed mensch manages to teach us all about living robustly and fully. Kudos to author and acclaimed sports columnist Mitch Albom for telling this universally touching story with such grace and humility.

_ Gail Hudson

As the founder of the Sacred Dying Foundation in San Francisco, theologian Megory Anderson provides real-life examples and strong storytelling to cover all aspects of dying, including how to help someone let go of "unfinished business" and how to massage a dying person to help them let go of their body.

Anderson lists the tools for rituals (such as holy water, incense, and markers and paper for writing final thoughts). She even devotes an entire chapter to music — a powerful tool in healing and transcendence. Anderson offers a lovely book that covers everything you need to know to help a dying person feel deeply cared for, whether you choose to read poems aloud from the final chapters or simply sit in silence, holding the hand of a loved one.

In Western societies today, the amazing feats of technology have led to a view of death as a medical failure, rather than an absolute spiritual transition. Ms. Anderson helps us to see how we can make this transition into the unknown in a spiritualized and sacred way, no matter what our belief system may be.

An uplifting masterwork of comfort and compassion exploring the ultimate questions of existence and transcendence. Nothing has riveted humanity's interest more — nor has anything been more frightening or awe-inspiring — than the experience known as death.

In Home with God, the final installment of his bestselling Conversations with God series, Neale Donald Walsch asks the questions that everyone has longed to ask and receives the answers readers have all been waiting for. Through his profound and personal dialogue with God, Walsch explores the process by which all human beings must end their days here on Earth and begin their new life in God's Kingdom, to which all eventually return, regardless of their earthly deeds.

In 1927, Walter Evans-Wentz published his translation of an obscure Tibetan Nyingma text and called it The Tibetan Book of the Dead. Popular Tibetan teacher Sogyal Rinpoche has transformed that ancient text, conveying a perennial philosophy that is at once religious, scientific, and practical.

Through extraordinary anecdotes and stories from religious traditions East and West, Rinpoche introduces the reader to the fundamentals of Tibetan Buddhism, moving gradually to the topics of death and dying. Death turns out to be less of a crisis and more of an opportunity. Concepts such as reincarnation, karma, and bardo and practices such as meditation, tonglen, and phowa teach us how to face death constructively. As a result, life becomes much richer. Like Elisabeth Kubler-Ross, Sogyal Rinpoche opens the door to a full experience of death.

People say life doesn't come with an instruction manual, well this is it. Why you are here; what is important; how to deal with departure (death), your own and others; what happens if you spend your life sidetracked by the 'immediate but not important' issues. Written in a way that compels you to move to action, beyond simple intellectual curiosity.

This book will change the way you look at the passing of the physical body. Not only does it provide another culture's way of honoring the soul's process, but it enlightens the reader in living more fully. I re-read this book after the death of my sister in a car accident in 2004. I re-read his book again this spring after the death of my 90-year old mother. As I keep re-reading it, I come closer to being ready for my own death, whenever it may come.

_ Janet Grace Riehl, Author of Sightlines: A Poet's Diary
End of Life: Nursing Solutions for Death with Dignity
by Lynn Keegan PhD RN AHN-BC FAAN, Carole Ann Drick PhD RN TNS TNSCP

2011 AJN Book of the Year Winner in both Gerontologic Nursing and Hospice and Palliative Care!

This professional clinical guide presents nursing administrators and nurses in acute care agencies, nursing homes, hospice, and palliative care settings with detailed implementation strategies for accommodating dying persons and their loved ones as they make the transition from physical life. It presents the need for and the development of the concept: Golden Room concept: a place for dying that facilitates a dignified, peaceful, and profound experience for dying persons and their loved ones.

This book presents a practical solution on multiple levels that will benefit all involved-patient, family, nurses, administrators, policy makers, and insurance companies. It presents the theoretical frameworks for end-of-life care and how the Golden Room concept fits into these frameworks.

"Every once in a long while a short, succinct book comes along that awakens our senses and motivates us to action. [This] is one such book. It cuts right to the chase to offer a new, innovative change for an old, outmoded rite of passage."

_ Barbara Dossey, PhD, RN, AHN-BC, FAAN, Co-Director, Nightingale Initiative for Global Health, Canada and Virginia

Eldercare Resources & Books   Back to Quick Index of Eldercare Resources & Books

Elder Care Books Section: Dealing with Alzheimer's Disease and Dementia

More than four million Americans suffer from Alzheimer's, and as many as twenty million have close relatives or friends with the disease. Revolutionizing the way we perceive and live with Alzheimer's, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between carepartners and patients and has proven successful with thousands of people living with dementia.

Joanne Koenig Coste, a nationally recognized expert and an outspoken advocate for patient and family care, is a board member of the American Journal of Alzheimer's Disease & Other Dementias. She lectures around the country and is the recipient of a National Award for Health Heroes from Reader's Digest. She was named a "Woman to Watch in the 21st Century" by NBC Nightly News.

There is no easy way for me to talk about the final years of my grandmother's life and her diagnosis with Alzheimer's disease. I only wish Talking to Alzheimer's had been available to me and my family during that difficult time. Claudia Strauss's voice is tender, respectful, competent and understanding. This book is both supportive and practical — providing concrete ways to maintain or build a connection with people suffering from Alzheimer's. I would highly recommend this book to anyone with friends or family that are suffering from Alzheimer's, and would make it required reading for staff and professionals working with Alzheimer's patients.

_ K. Muldrow, Ohio, USA

I wish this book had been available when I started the caregiving journey with my parents, both with (mis-diagnosed) early stage Alzheimer's disease. I had to learn everything the hard way. Knowledge is power and this book will explain all the details your doctor doesn't have time to tell you. If you know anyone starting down this path with elderly loved ones, this is a book they will thank you for.

I also interviewed Mr. Kuhn on my radio program, Coping With Caregiving, and was impressed further by his vast knowledge and by the way he explained Alzheimer's early stage, which is so easily overlooked by families as well as physicians.

_ Jacqueline Marcell, Author of Elder Rage

Although today the public all too often associates dementia symptoms with Alzheimer's disease, the medical profession can now distinguish various types of "other" dementias that also undermine cognitive abilities. What If It's Not Alzheimer's is the first comprehensive guide dealing with frontotemporal dementia (FTD), one of the largest groups of non-Alzheimer's dementias.

Beginning with a discussion of the medical facts, part one defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. The essays in part two focus on managing care and examine daily routines, including nutrition, exercise, socialization, adapting the home environment, and behavioral issues. Part three centers on caregiver resources, and the contributors identify professional and government assistance programs along with private resources and legal options. Finally, the chapters in part four stress the need for caregivers to take care of themselves as well as their loved ones with FTD.

This much-needed resource work, the first of its kind, provides a wealth of real and practical information to both healthcare professionals and caregivers of someone suffering from frontotemporal dementia. The contributors to this book are either specialists in their fields or have exceptional hands-on experience with FTD sufferers

_ Lisa Radin and her son, Gary Radin, also founded the Neil L. Radin Caregivers Relief Foundation in 1998 to share their experience and support families of loved ones who suffer from frontotemporal dementia.
There's Still a Person in There: The Complete Guide to Treating and Coping with Alzheimer's
by Michael Castleman, Matthew Naythons, Dolores Gallagher-Thompson

More than 70 percent of the two to four million people diagnosed with Alzheimer's disease are cared for at home by family members, often until the disease's final stages. Numerous books for caregivers have appeared over the last decade, but the need for high-quality publications continues.

This book's authors have gathered the latest research on the causes, diagnosis, current and potential treatments for Alzheimer's and communicated these findings clearly and intelligibly. Essential information on getting a diagnosis, coping with behavioral changes, medications, and sources of support and assistance is provided.

This book combines the latest medical and scientific information with actual stories by caregivers about their experiences and observations caring for loved ones with Alzheimer's. Each experience was unique. I highly recommend this book to anyone dealing with Alzheimer's.

_ A. Blanda, Montclair, New Jersey

Virginia Bell, MSW, developed the Helping Hand Adult Day Center in Lexington, Kentucky. The award-winning facility was one of the first dementia-specific adult day programs established in this country and remains one of the best. David Troxel is the executive director of the California Central Coast chapter of the Alzheimer's Association and is also the associate editor of Early Alzheimer's, an international newsletter.

As a professional in the Alzheimer's field, as well as a family caregiver, I have read dozens of books on caring for people with Alzheimer's disease. Though there are many excellent ones and Bell & Troxel's The Best Friends' Book of Alzheimer's Activities is another favorite, this is the first book I most recommend to anyone on the challenging journey of caring for someone with Alzheimer's disease. It is simply superb.

_ L. Arbuthnot

An excellent book for both the professional caregiver and families trying to deal with this sometimes unfathomable disease. Gives practical ideas and techniques for helping people with dementia deal with issues from paranoia and blaming to sadness and helplessness.

I work in an assisted living facility for dementia care. We deal with all stages of Alzheimer's disease, and experience many behaviors that are difficult for staff and family to handle. This book gives anecdotal and concrete advice and tools to use to communicate with people suffering from dementia.

I have applied many simple suggestions and found that they are surprisingly on target. I have been able to bring a much calmer mood to our unit by sharing these techniques and also the different frame of reference they represent. Our residents are wonderfully special people, and this book helped me to help them better in handling their disease.

_ Don Richards, Anacortes, Washington

The 36-Hour Day follows the format of the previous two editions but has been thoroughly updated to incorporate new information on the latest research, several drugs that hold promise, and genetic aspects of Alzheimer's. The heart of the guide remains unchanged, focusing on helping families cope with this progressive and irreversible disease.

Besides tips on how to care for the demented during the various stages of the disease, the text discusses the different kinds of help available and how to seek it. Financial and legal issues are well covered, while sections on nursing homes and other alternative living arrangements provide advice and practical suggestions.

This bestselling book has remained the "bible" for families who are giving care to afflicted loved ones. I have recommended this book many times to people who have the heart-breaking task of caring for a family member with Alzheimer Disease or some other form of dementia. This book is the most practical and compassionate guide yet.

The most important gift of this book will be an understanding of the most frustrating and exhausting aspects of such caregiving, and the very useful solutions offered that actually are effective. Since my medical specialty is to try to prevent dementia, and other age related diseases, I hope my patients arrive in my office long before they have this debilitating disease.

After you get this book, and have learned to care for your aging elder with less stress and burnout for yourself, consider what you can do to prevent this from happening to you!

_ Dr. Tedde Rinker, Anti-Aging Medical Specialist, Redwood City, CA

More Elder Care Book Sections Coming Soon!:

Elder Care Books   Back to Quick Index of Eldercare Resources & Books

      About the Aging Life Care Association (ALCA)

ALCA is a nonprofit professional organization representing the field of Aging Life Care™ (also known as geriatric care management). ALCA promotes high standards of practice, professional ethics, and continuing education for its members. Membership is open only to individuals qualified by education and experience. Since its formation in 1985, ALCA has become the recognized and respected lead organization of practitioners in this field. Primarily a national organization ALCA also has members in Canada and other countries. For more information please visit or call (520) 881-8008.

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