Home Care and Hospice Resources
- National Hospice and Palliative Care Organization (NHPCO)
The National Hospice and Palliative Care Organization is dedicated to the continuous improvement in the quality of hospice and palliative care services, and business practices and assuring access to the increasing use of palliative and hospice care and integration of end-of-life care into the health care continuum.
- ASA | American Society on Aging
Founded in 1954, the American Society on Aging is an association of diverse individuals bound by a common goal: to support the commitment and enhance the knowledge and skills of those who seek to improve the quality of life of older adults and their families. The membership of ASA is a multidisciplinary array of professionals who are concerned with the physical, emotional, social, economic and spiritual aspects of aging. They range from practitioners, educators, administrators, policymakers, business people, researchers, students, and more.
- Hospice Foundation of America
On this website you can learn about hospice care, how to select a hospice and how to locate a hospice near you. You can learn of HFA's programs, read excerpts from the publications, order books and videos and sign up for the annual bereavement teleconference. Hospice Foundation of America is a not-for-profit organization that provides leadership in the development and application of hospice and its philosophy of care.
Through programs of professional development, research, public education and information, Hospice Foundation of America assists those who cope either personally or professionally with terminal illness, death, and the process of grief. Hospice Foundation of America provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the American health care system and the role of hospice within it.
- National Association for Home Care and Hospice (NAHC)
NAHC is the nation's largest trade association representing the interests and concerns of home care agencies, hospices, home care aide organizations, and medical equipment suppliers.
NAHC is the premier clearinghouse for home care and hospice information. NAHC receives requests from members, other health care providers, government officials, journalists, scholars, and industry analysts for the latest facts and figures on home care and hospice. NAHC compiles and reports the data of greatest interest to its members for use in policy analysis and educational campaigns to policymakers and the general public.
- American Association for Homecare (AAHomecare)
The American Association for Homecare (AAHomecare) works to strengthen access to healthcare in the homes of millions of Americans. Woven from the fabric of the American family, homecare is shaping our healthcare future.
AAHomecare is a national association that represents every line of service in the homecare community, including home health and home medical equipment providers, respiratory and infusion therapy, telemedicine, telehealth, rehab and assistive technology, and hospice.
Long Term Care Resources
- AAHSA: American Association of Homes and Services for the Aging
The members of the American Association of Homes and Services for the Aging serve two million people every day through mission-driven, not-for-profit organizations dedicated to providing healthy, affordable and ethical aging services for America.
- American Health Care Association (AHCA)
The American Health Care Association (AHCA) is a non-profit federation of affiliated state health organizations, together representing more than 10,000 non-profit and for-profit assisted living, nursing facility, developmentally-disabled, and subacute care providers that care for more than 1.5 million elderly and disabled individuals nationally.
AHCA represents the long term care community to the nation at large ‚ to government, business leaders, and the general public. It also serves as a force for change within the long term care field, providing information, education, and administrative tools that enhance quality at every level.
ElderWeb was created by Karen Stevenson, a consultant with over 19 years of experience in long term care, finance, and technology. Over its eight years of existence, ElderWeb has grown to include thousands of reviewed links to long term care information, a searchable database of organizations, and an expanding library of articles and reports, news, and events.
This award-winning site is designed to be a research site for both professionals and family members looking for information on eldercare and long term care, and includes links to information on legal, financial, medical, and housing issues, as well as policy, research, and statistics.
- Long Term Care Link
The National Care Planning Council's website is one of the most comprehensive resource for long term care planning available anywhere. Dozens of excellent articles on all aspects of long term care. The providers on this site are also here to help you with all your planning needs.
- AAHSA: American Association of Homes and Services for the Aging
The members of the American Association of Homes and Services for the Aging serve two million people every day through mission-driven, not-for-profit organizations dedicated to providing the services people need, when they need them, in the place they call home.
Our members offer the continuum of aging services: adult day services, home health, community services, senior housing, assisted living residences, continuing care retirement communities, and nursing homes. AAHSA's commitment is to create the future of aging services through quality people can trust.
State and Federal Government Agencies
- Pennsylvania Department of Aging
This governmental agency's mission is to enhance the quality of life of all older Pennsylvanians by empowering diverse communities, the family and the individual. The Pennsylvania Department of Aging was created in 1978 by the state legislature after years of intensive lobbying by individuals and groups representing our rapidly growing elderly population.
The Department is charged
with being an advocate for the interests of older Pennsylvanians at all levels of government and oversees many services and benefits to older Pennsylvanians - most provided through the 52 Area Agencies on Aging which were created in the federal Older Americans Act and Pennsylvania's Act 70. They are leaders of what is known as the state and local aging network, and partners in it.
The Official U.S. Government Site for People with Medicare that offers comprehensive information on Medicare, prescription drug coverage, long term care placement, and other issues affecting the Medicare subscriber. Compare Medicare prescription drug plans and coverage and use the Formulary Finder for Prescription Drug Plans - a tool that will allow you to find plans in your state that match your required drug list.
- The Gerontology Center at Penn State
The Penn State Gerontology Center strives to carry out research, instruction, and community-service programs of the highest quality and to make those resources available to the Commonwealth and the nation.
The Center seeks to advance the study of aging in the biological, behavioral, and social sciences; stimulate communication among scholars of different disciplines and among teachers, researchers, practitioners, government officials, and the elderly; promote development of undergraduate and graduate courses in adult development and aging; and foster applied research that improves the quality of life and promotes the welfare of adults and the elderly.
CaregiverPA is a guide to available resources for older adults and their families. This Website provides links below to help you answer caregiving questions, find a description of available resources, and search for resources available in a specific Pennsylvania county.
- Allegheny County — Area Agency on Aging
The Area Agency on Aging is an office of the Allegheny County Department of Human Services. Its purpose is to provide programs and services that enable the older adults of Allegheny County to maintain their independence, and to have safe, healthy lifestyles with the type of care that is needed.
The affiliated Pittsburgh Senior News publishes the Allegheny County Senior Resource Guide, a 100-page publication filled with senior citizen related topics and resources.
Bereavement, Grief, Death and Dying
- Growth House
A searchable resource list. Growth House provides this portal as a gateway to resources for life-threatening illness and end of life care. Their primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Topic pages explain major issues in hospice and home care, palliative care, pain management, grief, death with dignity, and quality improvement. In addition to their educational services, Growth House, Inc. is also a full-service technical consulting firm specializing in end-of-life care.
- Association for Death Education and Counselling (ADEC)
The Association for Death Education and Counseling is a multidisciplinary professional organization dedicated to promoting excellence in death education, bereavement counseling and care of the dying. Based on theory and quality research, ADEC provides information, support and resources to its multicultural membership and, through them, to the public.
The Association for Death Education and Counseling envisions a world in which death, dying, grief, and bereavement are recognized as significant aspects of the human experience. Ever committed to being on the forefront of thanatology, this website provides a home for diverse professionals to advance the body of knowledge and promote practical applications of theory in these areas.
Dedicated to providing information and support to patients, families and friends facing life-threatening illnesses, this resource contains more than one hundred articles regarding end-of-life issues. Includes an especially good section on grief and bereavement and some good advice on how to assist children who have experienced a traumatic loss.
- Caring Connection
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.
Caring Connections provides free resources and information to help people make decisions about end-of-life care and services before a crisis; helps people connect with the resources they need, when they need them; and brings together community, state and national partners working to improve end-of-life care.
This website has a good concise section on the many types of grief and mourning, including anticipatory grief, sudden loss, and complicated grief. You can also download your state's Advance Directive (Living Will and Medical Power of Attorney) in PDF format via this site.
- AARP | Grief and Loss
AARP's site lists local and national organizations offering bereavement support; gives an overview of financial and legal action steps to take when someone dies; provides information on funeral arrangements, pricing and other urgent details; details the steps to take to prepare for a death and the basic actions to take during the first few months after the death of a loved one; and many articles about grief and mourning.
National Associations and Organizations
- Aging Life Care Association
The Aging Life Care Association (ALCA) is a non-profit association of professional practitioners whose purpose is the development, advancement, and promotion of humane and dignified social, psychological, and health care for the elderly and their families through counseling, treatment, and the delivery of concrete services by qualified, certified providers. ALCA is committed to working towards the highest quality of care for the elderly and their families through education, advocacy, and high standards of professional practice.
A life care manager is a health and human services professional, such as a gerontologist, nurse, social worker, or psychologist with a specialized focus on issues related to aging and elder care. Life care managers work privately with older adults and their families to create a plan of care that meets the needs of the older adult. They will meet with you to help you understand your loved one's needs and to learn what resources and options are available to meet those needs.
- National Family Caregivers Association (NFCA)
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers. They are committed to improving the overall quality of life of caregiving families and minimizing the disparities between family caregivers and non-caregivers.
- National Academy of Elder Law Attorneys (NAELA)
Legal problems that affect the elderly are growing in number. Our laws and regulations are becoming more complex. Actions taken by older people with regard to a single matter may have unintended legal effects. It is important for attorneys dealing with the elderly to have a broad understanding of the laws that may have an impact on a given situation, to avoid future problems.
The NAELA membership is comprised of attorneys in the private and public sectors who deal with legal issues affecting the elderly and disabled. Members also include judges, professors of law, and students. Some of the issues NAELA members assist their clients with include, but are not limited to: public benefits, probate and estate planning, guardianship/conservatorship, and health and long-term care planning.
- National Center On Elder Abuse (NCEA)
The National Center on Elder Abuse (NCEA), funded by the U.S. Administration on Aging, is a national resource for elder rights, law enforcement and legal professionals, public policy leaders, researchers, and the public. The Center's mission is to promote understanding, knowledge sharing, and action on elder abuse, neglect, and exploitation.
With partners at the American Bar Association (ABA) Commission on Law and Aging, Clearinghouse on Abuse and Neglect of the Elderly at the University of Delaware, National Adult Protective Services Association, and the National Committee for the Prevention of Elder Abuse, NCEA carries out a broad range of activities. This site can also help you to detect the signs of elder abuse and tells you how you can report it and prevent it.
- Meals on Wheels Association of America (MOWAA)
The Meals On Wheels Association of America (MOWAA) is the oldest and largest organization in the United States representing those who provide meal services to people in need.
MOWAA works toward the social, physical, nutritional, and economic betterment of vulnerable Americans. The guiding principle to which it subscribes is to help those men and women who are elderly, homebound, disabled, frail, or at risk.
Provides nutritious meals to shut-ins or ailing seniors on a sliding scale fee basis.
- National Association of Senior Move Managers (NASMM)
The National Association of Senior Move Managers (NASMM) is a non-profit, professional association of organizations dedicated to helping older adults and their families with the physical and emotional aspects of moving. NASMM members are committed to maximizing the dignity and autonomy of older adults as they transition from one living environment to another.
Founded in 2002, NASMM strives to facilitate the physical and emotional aspects of relocation for older adults by increasing industry awareness, establishing a national referral network of senior move managers, enhancing the professional competence of members, and promoting the delivery of senior move management services with compassion and integrity.
Health, Medical and Pharmaceutical Resources
- Alzheimer's Association
The Alzheimer's Association, the world leader in Alzheimer research and support, is the first and largest voluntary health organization dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer's. Their mission: To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
- National Institute of Mental Health (NIMH): Older Adults and Mental Health
Depression is not a normal part of aging. Yet depression is a widely under-recognized and undertreated medical illness. Depression often co-occurs with other serious illnesses, such as heart disease, stroke, diabetes, cancer and Parkinson's disease. Because many older adults face these illnesses as well as various social and economic difficulties, health care professionals may mistakenly conclude that depression is a normal consequence of these problems — an attitude often shared by patients themselves.
You can read, print, or order NIMH booklets, fact sheets, and other publications on older adults and mental health such as: Older Adults: Depression and Suicide Facts, a brief overview of the statistics on depression and suicide in older adults, with information on depression treatments and suicide prevention. NIMH is dedicated to reducing the burden of mental illness and behavioral disorders through research on mind, brain, and behavior.
This website has the most comprehensive prescription drug monographs available for thousands of medications listed by both brand and generic names. Monographs include: Description, Clinical Pharmacology, Indications & Dosage, Side Effects & Drug Interactions, Warnings & Precautions, Overdosage, Contraindications and Patient Information.
This site has also begun to list monographs and information for alternative medicines, including: Western Herbs, Chinese Herbal Remedies and Homeopathic Remedies.
- Consumer Reports Best Buy Drugs
Consumer Reports Best Buy Drugs is a public education project of Consumers Union, the publisher of Consumer Reports. Consumers Union is an expert, independent, nonprofit organization whose mission is to work for a fair, just, and safe marketplace and to empower consumers as they buy products and services.
The mission of the Consumer Reports Best Buy Drugs project is to provide consumers and their doctors with information to help guide prescription drug choices–based on effectiveness, a drug's track record, safety and price. The project aims to improve access to needed medicines for tens of millions of Americans—because they lack insurance coverage for prescription drugs, because the prices of many medicines today are so high, and because many consumers and physicians may not be aware of proven and affordable
- eMedicine Health -Consumer Health Information
The eMedicine Clinical Knowledge Base from WebMD
In May 2003, eMedicine launched this new consumer health site. Current medical information is available in the Health Resource, First Aid and Emergencies, and Lifestyle and Wellness Centers. With more than 5500 pages of health content, the site contains articles written by physicians for patients and consumers. Each article is reviewed by at least two physicians and a PharmD (Doctor of Pharmacy) prior to publication.
The eMedicine Clinical Knowledge Base contains 30,000 multimedia files and features the largest online repository of medical education credits for physicians, nurses and other caregivers.
Just for Seniors and Other Resources and Services
SeniorNet is a 501(c)3 nonprofit organization of computer-using adults, age 50 and older. SeniorNet's mission is to provide older adults education for and access to computer technologies to enhance their lives and enable them to share their knowledge and wisdom. Over 600 discussion forums, chat rooms, newsletters and more.
- Senior Resource
The "E-cyclopedia" of housing options and information for retirement, finance, insurance and care, this site provides a comprehensive source of housing information and services for seniors and their caregivers. The mission of Senior Resource is to provide education services to the senior population. SR serves as a resource and advocate in areas of importance to the well-being of the senior community, with primary attention given to housing, health, recreation, culture, and counseling.
- American Association of Retired Persons (AARP)
AARP is dedicated to enhancing quality of life for all as we age. With over 35 million members, AARP is the leading nonprofit, nonpartisan membership organization for people age 50 and over in the United States. The group is known for providing a host of services to this ever-growing segment of the population by informing members and the public on issues important to this age group; advocating on legislative, consumer and legal issues; promoting community service; and offering a wide range of special products and services to members.
BenefitsCheckUp, a free service provided by the National Council on Aging (NCOA), helps thousands of Americans to connect with governmental programs that can help them pay for prescription drugs, healthcare, utilities, and other needs.
- Enabling Devices | Products for Independent Living
Enabling Devices is an assistive technology company dedicated to developing affordable learning and assistive devices to help people of all ages with disabling conditions. Founded by Steven E. Kanor, Ph.D. and originally known as Toys for Special Children, the company now also carries a complete line of products for the physically challenged adult under Products for Independent Living.
Hundreds of useful items are offered here, including Augmentative Communication Devices, Capability Switches, Specially Adapted Sensory Devices, Computer Aids, Media Systems, Mounting Devices and a potpourri of items which the physically challenged community will find useful for enhancing their lives.
• About the Aging Life Care Association (ALCA)
ALCA is a nonprofit professional organization representing the field of Aging Life Care™ (also known as geriatric care management). ALCA promotes high standards of practice, professional ethics, and continuing education for its members. Membership is open only to individuals qualified by education and experience. Since its formation in 1985, ALCA has become the recognized and respected lead organization of practitioners in this field. Primarily a national organization ALCA also has members in Canada and other countries. For more information please visit www.aginglifecare.org or call (520) 881-8008.